Kylee's Story

November 28, 2018

Kylee was born in the Special Delivery Unit at Children’s Hospital. She was a medically fragile baby due to hypoplastic left heart syndrome, a birth defect that affects normal blood flow through the heart. Doctors gave her a 50/50 chance of survival. Her birth parents were not able to care for her, so she was placed in foster care. Her foster parents bonded with her and ultimately adopted Kylee when she turned two.

They knew that they were risking their hearts and those of their other children but felt they were called to be her family. The care and frequent hospital visits were daunting but it was all worth Kylee becoming their daughter.

At four years old, a regular follow-up appointment led to a lengthy re-admission when Kylee’s team discovered her heart function had deteriorated. Kylee was listed for a heart transplant.  A few months later while waiting for a heart catherization, the team delivered the news that a heart had been found for Kylee. The transplant was a success. It’s been well over a year since the surgery and she is thriving. It’s a joy to see Kylee participate in life and play without fear of winding up in the hospital.