CHOP Patient Stories: Anthony

We're helping kids like Anthony through the 2019 WOGL Loves Our Kids Radiothon at CHOP

November 11, 2019

Anthony was diagnosed prenatally with Down syndrome and a congenital heart defect. A day after he was born, he was transferred to CHOP in need of treatment for pulmonary hypertension and transient myeloproliferative disorder which required chemotherapy.

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During Anthony's time in the NICU, he received his heart repair along with charming his nurses and making a few girlfriends. Anthony’s mom, Amy, says CHOP saved Anthony, and Child Life and Social Work at CHOP helped create a sense of normalcy for their family during his seven and a half month stay.

Social Work provided things like gas cards to help pay for the long commute from Limerick, PA, and Amy even had her hair cut at the hospital by a volunteer. Something as simple as a haircut, meant so much because it didn't take time away from Anthony or time away at home with their four and six year olds.

Child Life helped Anthony's big brother and sister understand why their new sibling needed to stay at the hospital and provided playtime for the family to bond.

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On December 3rd and 4th from 6a-7p, 98.1 WOGL and Children’s Hospital of Philadelphia are teaming up to raise money to support patient care programs at CHOP. Learn more here.

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